STIFF PERSON SYNDROME - ​​L IVING FORWARD

​awareness, knowledge, hope

 

• Stiff-person Syndrome with amphiphysin antibodies 
  Distinctive features of a rare disease 
  Beth B. Murinson, MS, MD, PhD
  Joseph B. Guarnaccia, MD
  

• Review of 23 patients affected by the stiff man syndrome: clinical subdivision into stiff trunk (man) syndrome, stiff limb syndrome, and progressive encephalomyelitis with rigidity
  R A Barker, T Revesz, M Thom, C D Marsden, P Brown

• Stiff-limb Syndrome: a case report  
  Hajjioui et al. Cases Journal 2010

• Stiffman (Stiffperson) Syndrome
  (A detailed outline of symptoms, variants, treatments, and diagnostic testing.)

• Stiff Person Syndrome: A Rare Neurological Disorder, Heterogeneous in Clinical Presentation and Not Easy to Treat
  Susanne Buechner, Igor Florio, and Loredana Capone
  
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• Anti–Glutamic Acid Decarboxylase Antibodies in the Serum and Cerebrospinal Fluid of Patients With Stiff-Person Syndrome Correlation With Clinical Severity

• Specific phobia is a frequent non-motor feature in stiff man syndrome 
  P Henningsen and H-M Meinck (PDF file)

• Two Stiff Person Cases Misdiagnosed as Conversion Disorder
  Dr. Suzan ÖZER, Dr. Halil ÖZCAN, Dr. Gülser Şenses DİNÇ, Dr. Aygün ERTUĞRUL, Dr. Murat REZAKİ, Dr. Aylin ULUŞAHİN
  
  

• Progressive encephalomyelitis with rigidity and myoclonus

• Stiff Person Syndrome
  N ational Organization for Rare Disorders

• Stiff man syndrome presentin g with low back pain ​ ​

• Stiff - Man Syndrome    
  ​Yale School of Medicine
  
  
  
• Clinical Spectrum of Stiff Person Syndrome: A Review of Recent Reports
  Harini Sarva, Andres Deik, Aman Ullah, and William L. Severt
  
  
  
• High-Dose Intravenous Immune Globulin for Stiff-Person Syndrome
  Marinos C. Dalakas, M.D., Mavis Fujii, M.D., Mian Li, M.D., Bashar Lutfi, M.D., Joan Kyhos, B.S.N., and Beverly McElroy, C.N.R.N
  

• Cannabis derivatives therapy for a seronegative stiff-person syndrome: a case report
  

• Recent Advances and Review on Treatment of Stiff Person Syndrome in Adults and Pediatric Patients
  Monitoring Editor: Alexander Muacevic and John R Adler
  

• Stiffman syndrome: From the bedside to the bench
  

•   Stiff person syndrome in South Asia
   Thashi Chang, Bethann Lang, A Vincent
  

• MEDLINE Plus Drug Information
  

• Medical Dictionary Online
  

• IG Living
  

• Neurology Now
  

• Medscape Today
  

• NORD (National Organization For Rare Diseases)
  

• NIH, National Institues For Health
  

• NIH Office Of Rare Research (GARD)
  

• Disability*gov,
  

• Council For Disability Awareness
  

• National Center For Complimentary & Alternative Medicine
  

• Global Genes
  

• Rare Disease United Foundation
  

• The Invisible Disabilities Association - (copy & paste url)   https://invisibledisabilities.org/
  

• Rare Disease Legislative Advocate
  

• PubMed