Stiff Person Syndrome ~ Living Forward. I have lived 28+ years with SPS. Informative links, media stories, my personal account. "awareness, knowledge, hope" <title/> <html> <title>Stiff Person Syndrome Living Forward I have lived with SPS for 25+ years. I share links to SPS info, helpful resources. & blog about my life. Living forward.


​awareness, knowledge, hope


Stiff Person Syndrome Articles

"Knowledge and human power are synonymous."
`Francis Bacon

​       Nancy Rodgers-Neame, MD


         Goran Rakocevic, MD; Raghavanpillai Raju PhD; Marinos C. Dalakas, MD




        Simon M. Helfgott

Medication & Medical Dictionaries


        (An informative bimonthly source about immune globuline (gammglobulin), for those who receive IVIg infusions for SPS.)

         (A bimonthly publication dealing with many issues of neuromuscular disorder.)

        (Free online subscription to current and medical news and articles.)



"Let us not look back in anger or forward in fear, but around in awareness."
~ James Thurber ~

“The only source of knowledge is experience”
"Information is not knowledge."
~ Albert Einstein ~

awareness, knowledge, hope

**Disclaimer.  This is a personal website.  I am not affiliated with any person, facility, group, cause, or physician.  I do not endorse any person, facility, group, cause, physician, or treatment.  The medical information on this website is taken from peer-reviewed documents from PubMed.  It is limited and intended to give only a general layperson understnding of Stiff Person Syndrome  I am not qualified to give  medical advice.  The content of this website is original and from my own personal experiences.  Any similarities to anything or anyone else are coincindental.