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"Let
us not
look
back in
anger or
forward
in fear,
but
around
in
awareness."
~James
Thurber~
SPS
STUDY
A
General
Study of
Stiff
Person
(Stiffman)
Syndrome
This
study
was
researched,
written,
and
compiled
in 2006
by my
husband,
John
Crawford.
The
study
has
been
medically-reviewed
with
interest.
John was
diagnosed
with SPS
in 2001.
The
study is
still
open.
This
past
year,
marriage
with
both of
us
having
SPS,
has been
filled
with
deep love,
tremendous
blessing,
and the
expected
onslaught
of
challenge.
God has
been
faithful
in
helping
us face
each
day,
hand in
hand.
NEWS
RECENT
PUBLICATIONS
-
BIOWizard
PubMed
Articles
authored/coauthored
by Dr.
Rakocevic
and Dr.
Dalakas,
not all
pertaining
to SPS.
-
find-health-articles.com
Stiff-Person
Syndrome
(latest
article
abstracts)
If you
find an
abstract
of
personal
interest,
talk
with your
physician,
access a
medical
library,
or buy
the
article.
-
SearchMedica
A
good
source
for
recent
SPS
abstracts,
articles,
research
and
other
relevant
information.
(Type
"Stiff Person Syndrome" in
Search.)
-
Experts
in Stiff
Person
Syndrome
This
global
list of
physicians
conduct
continual
research
into SPS.
Many of
their
findings
become
published
articles
listed
in
PubMed
as
abstracts,
peer-reviewed
sources
of
information.
NORD
Research
Grant
For
Stiff
Person
Syndrome
The
National
Organization
for Rare
Disorders
(NORD)
has
announced
funding
opportunities
for 2010
through
its
clinical
research
program.
Grants
are
available
through
this
international
program
for the
study of
five
rare
diseases.
The
deadline
for
submitting
abstracts
and
letters
of
intent
to NORD
is May
17,
2010.
"But
there is
suffering
in life,
and
there
are
defeats.
No one
can
avoid
them.
But it's
better
to lose
some of
the
battles
in the
struggles
for your
dreams
than to
be
defeated
without
ever
knowing
what
you're
fighting
for."
~Paulo
Coelho~
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