"Let us not look back in anger or forward in fear, but around in awareness."
~James Thurber~

National Organization for Rare Disorders Awards Grant to Support Research in Stiff Person Syndrome 

I would like to express my appreciation to NORD and Lundbeck Pharmaceuticals for making this research grant possible.  A special thank you to those who donate to NORD's SPS Research Fund.  It takes the efforts of many to achieve something great.

RARE DISEASE DAY USA

There are approximately 7,000 rare diseases.  One in 10 people have one.  Rare Disease Day is recognized yearly on February 28th.

"Alone we are rare. Together we are strong."

NEWS

• America's Best Hospitals
  A Newsweek article ranking America's hospitals and specialties with physician directories.

• Social Security Compassionate Allowances
  Updated March 1, 2010

• Genetic Information Nondiscrimination Act (GINA) of 2008

• Summary of IVIg Crisis

• Experts in Stiff Person Syndrome
  This global list of physicians conduct continual research into SPS.  Many of their findings become published articles listed in PubMed as abstracts, peer-reviewed sources of information.

"But there is suffering in life, and there are defeats. No one can avoid them. But it's better to lose some of the battles in the struggles for your dreams than to be defeated without ever knowing what you're fighting for."
~Paulo Coelho~